Founders and Members
Neuroblastoma Canada (NC) was founded in October 2010.
Antonia entered the world of cancer in 2009 when her two year old son was diagnosed with stage IV neuroblastoma. Ever since then, the quest has been on to learn as much as possible about this disease.
Antonia also co-founded the group Advocacy for Canadian Childhood Oncology Research Network, Ac2orn. She volunteers for INBRACED (previously the NB Globe Website), is the Educational Coordinator for the NANT Parent Advisory Council (New Approaches to Neuroblastoma Therapy) and also writes chapters for the CNCF Neuroblastoma Parent Handbook. She volunteers for a number of other cancer related organizations in Canada.
Antonia holds a masters degree in Systems Design Engineering from the University of Waterloo. She has worked in various technology and design roles in the areas of commerce, public broadcasting, and private consulting. She has also worked a number of years as an Online Learning Consultant at the University of Waterloo – working with professors to create on-line courses, specifically with the Masters of Public Health program. Antonia lives in Ontario, Canada with her husband Aaron and three beautiful boys, Nate, Alex and Jonathan. Along with spending way too much time on the computer, she tries to fit in a long-distance run when possible and is a great lover of music.
A blog is kept for Nathaniel on the carepages website.
Aaron and his wife Antonia are parents to three beautiful boys, Nathaniel, Alexander and Jonathan. Nathaniel was diagnosed with stage 4 high-risk neuroblastoma in mid-2009 and is still in active treatment.
Aaron is a senior management professional with 15 years of experience working in technology-related businesses in the Toronto area. He has held several customer-facing and revenue-generating roles and has experience in contact centre and help desk management, client relationship management, information technology operations, and other related fields. Aaron holds a B.A.(H) and B.Ed. from Queen’s University.
His personal interests include all of the performing arts, particularly opera and musical theatre. He is a trained singer and has performed in numerous productions both amateur and professional. Aaron is an avid sports fan and enjoys football, golf, and tennis. Aaron and his family live in Ontario, Canada.
Kirby is a parent to two children, a 15 year old boy as well as a 7 year old girl. Maya Kim, my daughter, was diagnosed with neuroblastoma, March 26th, 2010. Like most parents, he wants to be involved as much as he can in Maya’s treatment as well as contribute to the greater whole in the neuroblastoma community. By engaging neuroblastoma.ca, he is hoping to unite and help the families in their journey through conquering this horrible disease.
Kirby is also a director of software research in a financial software company in Toronto. He is an avid motorcyclist who enjoys long distance rides across Canada and United States.
An online blog is kept for Maya to follow her journey through battling neuroblastoma.